The room is dark save for the gentle light cascading in the shape of a seashell against the ceiling. The sound of running water and birds cawing are emitting from the speaker on the wall. It is the perfect picture of serenity.
I am laying on a massage table with a heating pad that runs the length of the table beneath me. I have my head gently resting on a pillow and a blanket which was placed carefully over me.
Sounds good doesn't it?
Except in my mind, in my crazy mind... I am screaming, in the beginning, I am totally irrational. I keep telling my mind to just shut up for crying out loud (or in this case, in my head).
You see, I have needles all over my arms and the tops of my hands and these needles are all touching nerves and any little tweak, tweaks my nerves. Does it hurt...psh, uh...no. In fact, all my places that hurt to begin with didn't hurt anymore.
I was laying there uncomfortable but totally pain free. I made my mind shut up and relax and concentrate on the fact that I am feeling NO PAIN.
Life is good, but then I have to sneeze. I'll be honest. I totally said "shit" out loud. Three times I felt like I had to sneeze and three times I kept it at bay. Whoo. I can't imagine what sort of fun that would have been because see the blanket was resting gently on top of the needles and I was most definitely not going to move an inch.
So let's rewind to how I ended up becoming a human pincushion. Saturday, I took my kids to get their flu shot. I ended up getting mine too. I also showered before I left and got Hubbins into his chair. The kids appointment was at 10:45 and mornings are the worst for me. So this was huge. By the time I got home, I was starting to feel it. My mother had been bugging me to go to this crafters market because I actually want to open my own store and sell some of my crafts online and at these craft fair types of things. Anyhow, my mom ended up getting mad at me because I told her I wasn't going at the last minute. Literally, jacket on- purse in hand. Just could.not.do.it. After she left, I cried because I'm tired of people being mad at me and not understanding, I am tired of being tired and I am tired of the pain.
So, I guess you can say my mom interrupted my pity party when she called to say she had just seen this acupuncturist who fixed her arm (she has bone loss in her arm and it's torn some) in seconds using pressure points. She had told him about me and he said he could probably help. Well, to cut to the chase , my mom came and got me, took me there, he did some pressure point work on me and I still had a tiny bit of pain in my arm (the pain that was making me cry) but I could turn my head. It had been MONTHS since I had been able to turn my head without turning my upper torso.
So I made an appointment for Monday.
I hate needles. He asked where the pain was and I told him and he just picked up my hand and stuck in the first needle. I felt a pressure, but not pain and suddenly the pain I was talking about was gone. As embarrassing as this is. I was like a kid in a candy store. The more he poked the needles in the less pain I had. The night before, I had taken an ibuprofen because my pain was at a level 12 at least. At the risk of tmi, but in the interest of those coming to this blog for this info, I was in the middle of a flare up and flo was visiting. I don't know about anyone else but flo makes my pain waaaaaay worse. I avoid drugs until I just can't take it anymore. So I still had the ibuprofen in my system so my usual spots weren't bugging me but that didn't stop me from having him poke for those spots either.
It wasn't until the lights went out and I was laying there with nothing to do but think of the needles in me and this*. LOL! It felt like forever and a day. But it was more like an hour and 15 minutes. Half way through, I got my appetite back. I didn't even know that was missing. I have NEVER been SO hungry in my entire life.
Of course, after the woman checked on me to see if I was okay, my right nostril blocked off and made it difficult for me to breathe. It appears that the RA pain was totally masking a raging sinus infection. Finally when it was over, I told him about the blocked nostril and he put a needle in my head and moved it around until the blockage cleared.
Here's where ugly comes in. That was yesterday. As soon as I left there and drove through Carl's Jr and scarfed down a meal. I was freezing like an ice pop. By the time I came home, my head was on fire and my body was still cold. I took my temp and I had a fever over 100 degrees. I had this annoying tickling burning sensation in my sinuses. I did fall asleep and the fever did break. I've been dealing with the sinus infection all last night and all day. My pain did flip. I guess I should mention that I have symmetrical pain... I flare on one side and then sometimes it flips to the other.
BUT, the pain that flipped is totally bearable. In fact if I didn't have this annoying sinus thing I would be feeling incredibly awesome.
When I came home and laid down in my recliner, Scrawn decided to plop herself down on me and do her usual head butt to my knuckles. It didn't hurt! But the shock came when I went to rub her head. Her fur was so soft. I had forgotten how soft it was and I had never noticed when I stopped feeling that. Even when I felt my face, I didn't realize how soft my skin was. I'll admit it, I teared up...but in my defense, flo is still visiting. lol!
All in all, I would say it is totally worth it. I'm not on any drugs and I don't ever want to be. I have a list (knuckles, elbows, flipped pain) for tomorrow. I think I had the reaction I did because the needles allowed the release of my sinus infection. My mom went and saw him today and she did not have any where near the same reaction. I'm sure the doc will either have some kind of herb or antibiotic for me tomorrow.
I'm so happy and so scared at the same time. I don't want this to be a fluke. I look down at my hands and I see how the swelling is nearly gone and my fingers are almost as slender as they were, but I also see how deformed my knuckles are. The bump that juts out at the side and the width that won't allow me to wear my rings anymore.
I know I have to let it go and I know I have to trust that God does not want this pain for me. He has a plan for me and I just need to not lose sight of that again.
* Warning, the video is graphic, if you are squeamish or have nightmares easily- don't watch. Unfortunately, this is the way RA makes me feel except there is no relief in the end.
Tuesday, October 12, 2010
Saturday, October 2, 2010
Cat-urdays with Scrawnie
Speaking of which, I was a very good girl in the wee hours of today. Mom was having a horrible time and I cuddled up with her in her recliner and watched her like a hawk. I even gave her a few good head butts of support on her swollen hands to show her I cared. It made her squeal loudly, I think she was so happy! I like when my mom is happy.
Yesterday was Smudge's 4th birthday. She had a little party with some wet cat food for dinner and opened her presents. She got this cool rope thing (which Purries seems to have claimed as her own) and a soft white mousey. Grandma got me some kitty kisses (treats) cuz I am her favorite. Shhh...
Mom tried to take a pic of the b-day girl but she's a sketchy kitty, she always comes out as a blur. KITTENS!
Toodles
~S
Monday, September 27, 2010
Celebrating
CDQ's therapist called with an open appointment today. I've been taking iron for my anemia and my stomach has been all out of whack, so my mom took CDQ to the appointment today.
We were going to start switching off anyway. CDQ's therapist agreed that I needed to have some time away from CDQ and time with my other kids.
As the time got closer for them to leave, I realized it was going to be the first time I would be CDQ free with my other kids. At first I thought I should do something with them. Bake or something...but the day outside was absolutely gorgeous and there's so many things they have been missing out on because a lot of things trigger CDQ. So I decided to let them just be. I've been in and out of the house slowly moving my holiday things into our new shed and it's so refreshing to see the Oldest sitting at the picnic table with a focused intent look writing in her journal (she wants to be a writer), SS is coasting down our hill on her bike with the wind in her hair and a huge smile on her face. The boy and Poufy are working together to learn how to operate an RC car the boy has (they never realized it needed batteries. lol). There is music in the background. No fighting, no chattering, no yelling for the other kids to shut up because they are laughing and having a good time.
Even all my cats are out and about chasing each other up and down the hallway and exploring out on the porch, mingling with the dogs who are lazily lounging by the picnic table watching the kids enjoy themselves.
I made the kids lunch and baked my first loaf of pumpkin spice bread for the fall season. It's such a different atmosphere. It's peaceful, it's calm, it's loving.
The boy ran up to me after lunch and hugged me so tightly. He thanked me for letting them "do this", I could hear the lump in his throat. He was near tears and that breaks my heart, he will be 9 in a couple of weeks but he is still so little and fragile. Normally it would make me so angry at myself for letting it come to this, for letting CDQ control so much.
But inside, I feel peace. God has a plan for all of us and this is going to teach us something even if we don't know it right now. Some how, for now, this is making us stronger and my kids-- they will be paid back for the things they have had to endure. I can't worry about making it right for them anymore. I have learned that I could never make it right for them no matter what I did or didn't do. After all, I am not God. :-p
"Condemnation weakens us and we keep repeating the same error over and over and over, but celebration strengthens us." -From Joyce Meyer's book Eat the Cookie, Buy the Shoes (Pg 44)
So I will celebrate. I will not focus on things I have mistakenly considered failures but I will leave you with this from SS...
Yes, it is a toilet paper roll and indeed, she did color the inside of it as well and it does say "love is everywhere."
Don't you just love what it says and isn't it especially charming that it is on a tp roll? lol Boy do I remember the poo and pee days. I am.so.glad. they are behind us.
4 out of 5 ain't bad...nosireebob and we are still not done.
Saturday, September 25, 2010
Under Attack
I've been working really hard, trying to bring balance, strength and health back to me. Somewhere I became lost, bitter, hateful...a quitter.
I think the RA <-read constant pain- was the final straw but in this process, I have learned. I haven't ever truly quit. The fighter in me is still here. My faith in God never truly left no matter how much I argued, threw tantrums and "disowned" Him. I think I spent more time talking to God after I had called it quits than before. That's saying a lot considering those from my past will know I've mainly operated on my faith alone to get me through my entire life.
Somewhere, that solid constant got lost. Maybe it was the loss of feeling safe in my home both on the inside (the kids attacking me) and the outside (the shooting across the street), maybe it was the false accusations (by the children and the therapist), maybe it was the threats (by everyone) and maybe it was when I thought I was losing it all financially. When we thought our house was going to be foreclosed on and I had to stand in lines for food boxes. Maybe it was the fear that I was losing Hubbins when he came so close to death last year.
Or maybe it was simply the voice inside my head that kept shooting me down. That kept snarling at me "Who the hell do you think you are? You CAN'T do this! You're just...You!" Maybe that voice belonged to my ex stepfather and abuser, or maybe it belonged to my mom...most likely it was my own voice.
Last week, I heard myself tell CDQs therapist I was worthless. The words came out and it was like it wasn't even my own voice. I heard them and the tears came to my eyes because the truth had been spoken. But it couldn't be the truth.
Whatever it was, I'm working my way back. Yes, CDQ is hating every minute of it. Yes, she is attacking me multiple times a day. I keep telling myself mind over matter. But my physical being has other plans. Even though my mind is not sensing her as a threat so much anymore, my body changes gears on me. Her attacks make me physically ill. I'm typing right now with stiff swollen hands. She didn't stop until she saw her goal.
They say not to take it personal. They say it's not about you. I try so hard to believe that even when I'm staring into CDQ's eyes as she tells me it IS about me and that *I*, indeed, am the one she hates. My mind calmly ignores the perverse smile that plays on her lips. But my body reacts to it. My body reacts to her yelling at me to shut up even though I am not talking or even in her room. My body reacts to her calling me a bitch because she doesn't get her way.
Mind over matter, mind over matter mind overmatter mindovermattermindovermatter.....
Yesterday, Hubbins had a seating appointment for his new seating system. The appointment was an hour away. There was a big accident on the freeway that closed down all lanes in the direction we needed to go. We didn't get to his 12:30 appointment until after 2:30. While we were there, my mom called and told me CDQ had asked for water and called 911 instead.
She was calling to accuse me of beating her or some such thing and I wasn't even home. The other kids were huddled hugging each other and crying because they had a girl at the emergency children's center they were placed in who had told them they were there because her little brother had called 911 and lied to the dispatcher. My kids (minus CDQ) were terrified they were going to be taken away because CDQ lied.
I talked to them over speaker phone and reassured them they weren't going anywhere. I called the therapists office and spoke to the director who told me to have the police contact them if they need additional information. Then I called 911. I made arrangements to take the kids on a tour of the facilities for today.
I decided I was taking my power back and I was empowering my other children. Because CDQ has held this 911 nonsense over our heads for waaaay too long. So today we went. We were fortunate enough to run into an officer who I had confused with the 911 dispatcher who was going to give us the tour. I asked him to explain the process for children to be removed from the home. He told them they had to have some kind of evidence of abuse, they just wouldn't remove them. I reassured them that they could breathe because as we know there is no abuse in our home. My poor kids looked so solemn and fragile as they shook their heads. Except for CDQ she scoffed.
Her idea of abuse is not having access to television or radio (even though she now recognizes that those things cause her stomach pains, diarrhea and acid reflux), not having a cell phone or clothes from the mall, etc...
The police officer basically told her I was her parent and I called the shots. Sweet idea wasn't it? Then the actual dispatcher came out.
Needless to say, CDQ was not pleased.
She's going to not be pleased A LOT more often because I've been able to vocalize to CDQs therapist what has been going on in our home. Ever since CDQ flipped in front of her, she's been listening more than she did before.
I've fought so hard to keep CDQ under the radar. To keep her from being labeled, to keep her out of residential treatment. But I read this sentence from one of Joyce Meyer's books:
"The most foolish thing in the world is to try and do something about something you can't do anything about."
and it hit home.
As I said in my last post, I'm letting go and I've given it to God.
I think the RA <-read constant pain- was the final straw but in this process, I have learned. I haven't ever truly quit. The fighter in me is still here. My faith in God never truly left no matter how much I argued, threw tantrums and "disowned" Him. I think I spent more time talking to God after I had called it quits than before. That's saying a lot considering those from my past will know I've mainly operated on my faith alone to get me through my entire life.
Somewhere, that solid constant got lost. Maybe it was the loss of feeling safe in my home both on the inside (the kids attacking me) and the outside (the shooting across the street), maybe it was the false accusations (by the children and the therapist), maybe it was the threats (by everyone) and maybe it was when I thought I was losing it all financially. When we thought our house was going to be foreclosed on and I had to stand in lines for food boxes. Maybe it was the fear that I was losing Hubbins when he came so close to death last year.
Or maybe it was simply the voice inside my head that kept shooting me down. That kept snarling at me "Who the hell do you think you are? You CAN'T do this! You're just...You!" Maybe that voice belonged to my ex stepfather and abuser, or maybe it belonged to my mom...most likely it was my own voice.
Last week, I heard myself tell CDQs therapist I was worthless. The words came out and it was like it wasn't even my own voice. I heard them and the tears came to my eyes because the truth had been spoken. But it couldn't be the truth.
Whatever it was, I'm working my way back. Yes, CDQ is hating every minute of it. Yes, she is attacking me multiple times a day. I keep telling myself mind over matter. But my physical being has other plans. Even though my mind is not sensing her as a threat so much anymore, my body changes gears on me. Her attacks make me physically ill. I'm typing right now with stiff swollen hands. She didn't stop until she saw her goal.
They say not to take it personal. They say it's not about you. I try so hard to believe that even when I'm staring into CDQ's eyes as she tells me it IS about me and that *I*, indeed, am the one she hates. My mind calmly ignores the perverse smile that plays on her lips. But my body reacts to it. My body reacts to her yelling at me to shut up even though I am not talking or even in her room. My body reacts to her calling me a bitch because she doesn't get her way.
Mind over matter, mind over matter mind overmatter mindovermattermindovermatter.....
Yesterday, Hubbins had a seating appointment for his new seating system. The appointment was an hour away. There was a big accident on the freeway that closed down all lanes in the direction we needed to go. We didn't get to his 12:30 appointment until after 2:30. While we were there, my mom called and told me CDQ had asked for water and called 911 instead.
She was calling to accuse me of beating her or some such thing and I wasn't even home. The other kids were huddled hugging each other and crying because they had a girl at the emergency children's center they were placed in who had told them they were there because her little brother had called 911 and lied to the dispatcher. My kids (minus CDQ) were terrified they were going to be taken away because CDQ lied.
I talked to them over speaker phone and reassured them they weren't going anywhere. I called the therapists office and spoke to the director who told me to have the police contact them if they need additional information. Then I called 911. I made arrangements to take the kids on a tour of the facilities for today.
I decided I was taking my power back and I was empowering my other children. Because CDQ has held this 911 nonsense over our heads for waaaay too long. So today we went. We were fortunate enough to run into an officer who I had confused with the 911 dispatcher who was going to give us the tour. I asked him to explain the process for children to be removed from the home. He told them they had to have some kind of evidence of abuse, they just wouldn't remove them. I reassured them that they could breathe because as we know there is no abuse in our home. My poor kids looked so solemn and fragile as they shook their heads. Except for CDQ she scoffed.
Her idea of abuse is not having access to television or radio (even though she now recognizes that those things cause her stomach pains, diarrhea and acid reflux), not having a cell phone or clothes from the mall, etc...
The police officer basically told her I was her parent and I called the shots. Sweet idea wasn't it? Then the actual dispatcher came out.
Needless to say, CDQ was not pleased.
She's going to not be pleased A LOT more often because I've been able to vocalize to CDQs therapist what has been going on in our home. Ever since CDQ flipped in front of her, she's been listening more than she did before.
I've fought so hard to keep CDQ under the radar. To keep her from being labeled, to keep her out of residential treatment. But I read this sentence from one of Joyce Meyer's books:
"The most foolish thing in the world is to try and do something about something you can't do anything about."
and it hit home.
As I said in my last post, I'm letting go and I've given it to God.
Monday, September 13, 2010
Letting go...
First, there was a flare-up. Followed by a wicked sinus infection (and no insurance), followed by a flare-up overlapped by flo.
Thankfully the flare-up is gone, unfortunately the sitting around in pain thing made me so stir-crazy I got up at the butt crack of dawn this morning, watched the sun rise over the mountains and into the clouds and then fixed the gate, weeded and trimmed the rose bushes (whoa, those babies are taller than me!) and did some cross stitch after I finished reading a book.
PPLLLLLLLLLLEASE don't let me have another flare-up?!?
I know I over did it, but I've been out of commission for a week! I couldn't even take CDQ to therapy my mom had to. Yesterday I couldn't even lift my left arm.
I hate this so much, I hate not being able to do what I used to and I'm not even old enough to really be feeling this way.
Right now, I want to empty out the closets and start loading up the shed we bought so I can continue to declutter my house. Because believe it or not, I am *still* doing The Big Clean of 2010 (Little did I know it was going to take the whole damn year! lol). I want to finish organizing my sewing room so I can get down to some serious crafting, I want to clean out my laundry room, kitchen, etc...
All the things I used to put off I want done now (of course). Typically I do a big clean- dusting, carpet steaming, THE WORKS and put out my yummy smelling autumn stuff...but this year is probably going to be the same as last year, I didn't get a chance to do it all.
I hope not, I am trying to stay positive about the whole thing. Trying to see this past week as a mini (pain-filled) vacation.
So with that said, I know I can't control any of this and I am giving it to God. I am going to do some laundry and some baking and I am going to get Hubbins up and take care of some errands in town today and I ask God to please help me to do these things as painlessly as possible given the circumstances. And I want to thank Him for the great summer we were able to have this year.
Amen :-)
Happy Monday everyone! Have of a good week.
Thankfully the flare-up is gone, unfortunately the sitting around in pain thing made me so stir-crazy I got up at the butt crack of dawn this morning, watched the sun rise over the mountains and into the clouds and then fixed the gate, weeded and trimmed the rose bushes (whoa, those babies are taller than me!) and did some cross stitch after I finished reading a book.
PPLLLLLLLLLLEASE don't let me have another flare-up?!?
I know I over did it, but I've been out of commission for a week! I couldn't even take CDQ to therapy my mom had to. Yesterday I couldn't even lift my left arm.
I hate this so much, I hate not being able to do what I used to and I'm not even old enough to really be feeling this way.
Right now, I want to empty out the closets and start loading up the shed we bought so I can continue to declutter my house. Because believe it or not, I am *still* doing The Big Clean of 2010 (Little did I know it was going to take the whole damn year! lol). I want to finish organizing my sewing room so I can get down to some serious crafting, I want to clean out my laundry room, kitchen, etc...
All the things I used to put off I want done now (of course). Typically I do a big clean- dusting, carpet steaming, THE WORKS and put out my yummy smelling autumn stuff...but this year is probably going to be the same as last year, I didn't get a chance to do it all.
I hope not, I am trying to stay positive about the whole thing. Trying to see this past week as a mini (pain-filled) vacation.
So with that said, I know I can't control any of this and I am giving it to God. I am going to do some laundry and some baking and I am going to get Hubbins up and take care of some errands in town today and I ask God to please help me to do these things as painlessly as possible given the circumstances. And I want to thank Him for the great summer we were able to have this year.
Amen :-)
Happy Monday everyone! Have of a good week.
Wednesday, September 8, 2010
Cattititude
Me: Scrawn, why aren't you posting anymore?
Scrawn: Mother....did you NOT see the horrendous picture Purries posted of me last time? How can I face my readers?!? Why does Purries have to post? Blogging was MY thing. She always has to copy me and embarrass me. What a loser!
Me: She loves you! Wow, Scrawn, look how big you've gotten! I think I see some back fat over here...
Scrawn: What? Where?
Me: WHOA! Look at all that kitty!
Scrawn: WAIT! Are you like, seriously, taking my picture????
Scrawn: Mother....did you NOT see the horrendous picture Purries posted of me last time? How can I face my readers?!? Why does Purries have to post? Blogging was MY thing. She always has to copy me and embarrass me. What a loser!
Me: She loves you! Wow, Scrawn, look how big you've gotten! I think I see some back fat over here...
Scrawn: What? Where?
Me: WHOA! Look at all that kitty!
 |
| If you blog this, you are SO no longer my mother!!! |
Wednesday, September 1, 2010
This post is brought to you by the letters R and A.
Ugh. It's 5:30 am. I've been up since 2 am. I woke up because of the pain in my wrists, fingers and shins. It was the first time in forever that I actually fell asleep before midnight, I could not keep myself up even to 10 pm.
So, yeah... I still think I am in remission.
Yeah, I'm in the middle of a flare-up.
BUT, I can still walk...so I call that remission ;-)
So what does a girl do when she can't sleep and the world is sleeping? Cross- stitch while watching old episodes of Alfred Hitchcock on Netflix streaming. Blog... throw in the last load of laundry...
I know, I know... I said my fingers hurt and my wrists hurt and oh boy do they... but I am so sick and tired of being sick and tired, you know? Maybe I am causing my own pain.
I read a lot about the "I cannot do this anymore" in arthritis. I am in no way bragging or saying suck it up or anything like that. I worry when my time will come and I will have a list of "I absolutely cannot do this anymore."
I read some RA blogs by incredible women and I know when they say they can't, they really can't. I guess why I am fixating on the "can'ts" is because so many people I encounter seem to think I am full of it because some days I absolutely can't and others I will work through the pain.
I can't seem to explain the pain and the day to day unknown of it all to people.
I mean, after all...I LOOK ok and I keep making myself do very painful things.
Maybe I'm stupid, Maybe I'm causing myself more problems in the long run... but I know that others will understand. Those who walk in similar shoes will understand the denial, the loss, the humility that comes along with this. But I guess for me, it's mostly my feelings of failure.
The saying
I'm just not ready to give up yet. I may say it every now and again when the pain becomes unbearable. But I'm just not done.
So, yeah... I still think I am in remission.
Yeah, I'm in the middle of a flare-up.
BUT, I can still walk...so I call that remission ;-)
So what does a girl do when she can't sleep and the world is sleeping? Cross- stitch while watching old episodes of Alfred Hitchcock on Netflix streaming. Blog... throw in the last load of laundry...
I know, I know... I said my fingers hurt and my wrists hurt and oh boy do they... but I am so sick and tired of being sick and tired, you know? Maybe I am causing my own pain.
I read a lot about the "I cannot do this anymore" in arthritis. I am in no way bragging or saying suck it up or anything like that. I worry when my time will come and I will have a list of "I absolutely cannot do this anymore."
I read some RA blogs by incredible women and I know when they say they can't, they really can't. I guess why I am fixating on the "can'ts" is because so many people I encounter seem to think I am full of it because some days I absolutely can't and others I will work through the pain.
I can't seem to explain the pain and the day to day unknown of it all to people.
I mean, after all...I LOOK ok and I keep making myself do very painful things.
Maybe I'm stupid, Maybe I'm causing myself more problems in the long run... but I know that others will understand. Those who walk in similar shoes will understand the denial, the loss, the humility that comes along with this. But I guess for me, it's mostly my feelings of failure.
The saying
"She turned her can'ts into cans and her dreams into plans."keeps reverberating through my head.
I'm just not ready to give up yet. I may say it every now and again when the pain becomes unbearable. But I'm just not done.
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